I learned a hard lesson last week. So my hemotologist did a routine check after I stabilized and I no longer have anemia. However, they decided that as a preventative measure they would give me an iron injectafer which is really a fancy way of saying IV iron. It’s a 2 step process. You come in 2 times a week apart for 1 does of iron each time via IV and the actual dose of iron given takes only 15 minutes. It should last you at least 3 months if not a lifetime if you are not losing blood anyway in large amounts which they do not think I am anymore. I have had it before when they first were stabilizing me when I was still anemic so I knew what to expect…or so I thought.
Well I did my first of the 2 Injectafers last week and then went to get my unexpected plasmapheresis treatment the next day due to me not feeling well last week because I had sinus issues and overdoing things. The treatment pulled most of the iron right out of my body because it had not really had much time to absorb. No one knew this would happen apparently. I told the nurses at the hemotology office and where I get my plasma exchange and no one gave any warnings (which they usually do if they think there is a problem). So that was kind of a waste. The waste bag of my plasma was full of the iron I just received the day before. That was some expensive ‘waste’! So for this week I learned to reschedule it for after my plasma treatments are complete and now both parties know that for a person with MG and iron treatments this will happen. I was their guinea pig.