SO after talking to Amanda today she inspired me to write this post! 2 years ago when I was diagnosed with Myasthenia Gravis I learned that not only was it a neuromuscular disorder it is also an autoimmune disorder. With most autoimmune disorders balance is the key to keeping you stable. Balance of your system that is. That especially means what you eat. At the time I started noticing that at times I would eat things and they would cause me to have reactions that cause greater flare ups with my MG. But at the time I could not pin down what this was only that some food dishes did it like spaghetti which was something that we loved to make in my house that was quick and easy and I loved. I also noticed that I started having a few issues with potatoes but I was in DENIAL about this because it was no where near as severe a reaction as the spaghetti.
When I told my brother who happens to work in a hospital. He said he he heard about nightshade foods. I had not at the time. He said most people with auto immune issues cannot tolerate them. They have to stay away from them. So I started doing my own research and saw similar results on the lists were tomatoes (which made since with the spaghetti), eggplant (which I don’t eat), peppers (which did get me after being diagnosed), and POTATOES. I was saw it like this on the screen and bold letters though it was seriously not in caps. It was like my heart stopped.
I was like well you know what I see my hematologist and my doctors and my brother is not a doctor and I will ask them, LOL. I was totally in denial! Sure enough they confirmed the same things as soon as I said they cause flare ups and the symptoms I said I had and said I should back off them. I could do all of them easily (spaghetti was tough but I could) but POTATOES I litterally had tears come down my face before I could catch them.
I was like Kel from Kenan and Kel. “Who like Potatoes? Chris Likes Potatoes, I do, I do I do-ooo!!!”
I was worse that Dr. Suess! “I will eat the on a goat in a boat surrounded by a goat!”
I could prepare them more ways than BUBBA GUMP from Forrest GUMP, “Baked, Twice baked, scalloped, fried, smashed, mashed, boiled, steamed, sauteed, creamed, and on and on…
My husband seriously was like is this fool really crying about potatoes! He told my mom and she was like you have no idea about the special relationship this child has with potatoes…Well that and cheese! Be glad she did not have to give that up, you may have to put her on suicide watch for that (and she did not crack a smile). He just stood staring at me! He was like there is no way. Then my mom said the child’s nickname was the fry kid when she was little. We just made he french fries or gave them to her when she was little. She would eat them cold, hot, home made, anyway you cut them. She always had room for them! It was like an addiction!
My husband listened to this story in awe and just stared at me like I was some sort of a freak then said poor baby! then said what do you want and I smiled and said a baked potato and he looked to my mom for help and she was like she’s yours can’t help you with that one kiddo. I would take the life of Mr. Potato head and his whole family if I had to and I think my husband saw that murderous gleam in my eye! I was ready!
Though I never thought I could do it I did it cold turkey for my health and did well for 18 months and then I would only eat it near treatment because hey it would be cleansed out of my system and fixed when I had plasma exchange, LOL. But even now if I have a potato I try to only eat one fry (yes 1) every few months or so. My husbands says it’s fine I know my body and nothing bad happens, LOL. I also take my spice/ peppers to an extent with the same result which tells me my body is doing better. I am happy but I will not push! I eat things that have tomato paste such a barbeque sauce in moderation but I still do not eat spaghetti or tomatoes though I miss them dearly. I think the reason I really could not do them was more due to acid reflux which I now take meds for so I may try spaghetti once near my next treatment to test it but not right now. I do not want to tempt fate! LOL!