I have had a bit of a set back with my MG lately but only to have it go bumbling along again at its usual humdrum do as it wants pace. I feel i am rather in control of my MG; however, at times it likes to have a say sometimes and boy can it get mouthy.
Yesterday, i had to get a temporary catheter for treatments untul i get my subcutaneous souble vortex top of the line limo of ports next week. It wont be ready to use for about two weeks due to hiw tender it will be. But in the meantime i needed treatment a tad early due to some good and bad stress. So iff i go to get the temp and oh what a journey.
I told them i mus. be at work at noon on the same day. They said okay its a temp so its possible. Then i get there and they start and say we will use local anaesthesia…code for lidocaine injections ONLY…i did not realize this. What the heck was all the hubub about needing a driver. I could have driven myself after. I though i would have been given a mild sedative or something stronger than that but nope. No anaesthesia. They said i did better than some patients with anaesthesia and i just stared at him blankly with tears free flowing and shaking like a Chihuahua.
They kept asking if i was cold and i was like no…i was scared, you triggered my anginiphobia and im probably in shock.Ā
But to know that i will have the new port and start the process for my thymectomy soon fills me with a nervous excitment.
Myasthenia Gravis 
Sorry to hear of your discomfort. Sounds like you got some good news, too, though.
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Thank you and I did. Sometimes you get good news with the bad. You just have to find the silver lining š
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Your post about London was interesting. You’re right we do up-cycle things like phone booths. Have to go to Wales for the TARDIS tho.
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I heard about that! This was pretty cool! I loved it. We do not do enough of this!
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Sunshine at the end of it all:) And just because you’re not screaming on the outside doesn’t mean you’re not screaming on the inside; guess the doctor was trying to help:/
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True, lol
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Good luck with the thymectomy! I had one a couple of months back, hope it all goes well. Ask if you need any advice š
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Thank you! I am still waiting, I had some unforeseen circumstances occur but still on track to having one. I still look forward too it. The vortex dual port I have is working fine but I now know the importance of emlar or emla cream which I will be putting in a prescription for immediately. It is supposed to be a numbing cream that is put on an hour before treatment over your port site so the needles being jammed in your chest will not hurt so bad, LOL. They just told me about it after they had to do it. so I have to get it called in by my doctor before my next treatment.
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