So these were the updates I was waiting on! Though we have a long road ahead of us. I was just glad to hear some good news. I gives me new goals and another reason to come off this recent SALT rush. I have been hitting salted snacks pretty hard lately which is not like me.
So I gave up all nightshade foods about 2 years ago and around 3rd quarter of last year I noticed that after accidentally have a few of these foods it did not affect me and that I may be able to add a few back so I did somewhat slowly then altogether. I have been eating them pretty freely since then and now. I I have noticed that I do not feel like I did before. I do not feel as if my MG is flared by any means but health wise I feel icky. so I think I will at least back off some. I think as usual everything is okay in moderation but I went overboard and somewhat incidentally because I had not had my favorites snacks and food out of necessity cold turkey in over 2 years.
The new is that we have to see several specials to begin the process to have a baby but we can start the prenatal vitamins which we have to have in my system for at least 3 months before trying to conceive. The doctor said the specialist could say everything is fine and you can come off everything in 2 weeks time but if we have not started the vitamins now then we are are prolonged. So though I doubt the specialist will say this we can at least begin the vitamins. I hope I find some tasty gummy ones because I am not a fan of ‘horse’ size pills I have enough big pills I take everyday. We will see though.
Of the specialists to see I am seeing a man who has help write a book on MG Dr. James Howard whom they call shifu, lol. He will see about changing me from cell cept to something that does not suppress the immune system and cause birth defects or possibly taking me off altogether for pregnancy. I have met him before.
I also am going to see a neuro OBGYN (though I have a OBGYN). He will make sure that both my Mg is adhered to but also what I can be on for my migraines during my pregnancy and pain management for that. I am currently on a high dosage migraine preventer daily and this must be discussed.
Lastly, I am to see an ophthalmologist. I have some unbalanced pressure in my eyes and though they think it may be something minimal they want to be sure. I have never had diabetes any other condition with MG I am really healthy so they just need to make sure my eyes are not showing more strain due to my MG.
So if I even got a green light to immediately from all these doctors, which would be a big if, the earliest would could start would be April. However, I as keen as I am do this as soon as possible while body is still young and strong for an MGer I still have things to sort out personally. I will keep you guys updated! I know there are many young MGers out there who wish to have children who are following this and want to know how this works. I also want to remind them that each person is different just as with regular people and pregnancies but I will chronicle things as much as possible.