Hello Blogosphere,

I have had to take time out from blogging just after getting started again from a prolonged hospital stay. It gave me time to truly reevaluate many things in my life including my medical team and current state of life. I decided that I wanted to achieve more and that to do that I needed to re-vamp the way I looked at life and how I attacked it. But also to do this I need to be able to shine more hope in not only my life but those who suffer in the ways in which I do.

I have started the beginning stages of new avenues to help those around me more. Not just with blogging but with the empathy and knowledge I possess, I hope to be able to actually help them to get the treatment, care, support, and advocacy that is needed. This is a multi faceted process that will include a great deal more blogging as I hope to begin getting my blog sponsored by those who could aid in such research as well as quality of life which as well all know can be just as important.

I also hope to do some personal adventures that will hopefully place me in a better position to help others such as getting my real estate license to help get find more housing solutions for those with chronic and newly diagnosed illnesses. Their finances become depleted so quickly that anyway in which is a burden that is lifted off their shoulders. So in upcoming blogs I will blog as I always do but there will be some direct content to my hopeful sponsors and once I have them some links to their content in hopes to help you all. I will only be looking for sponsors that I believe will be beneficial and there is a rhyme or reason to all my actions. So if at anytime you feel that something is not adding up by all means just ask me and I have no problem explaining in a private or public format for everyone in case others had the same questions.

My hopes for sponsors will be along the lines of TD financial (banking), nutrition/wellness, Medical to sites like Etsy or marketing sites where you can have things made to fit your body during your goals (confidence or wellness) or even just support your family in their fight against an illness with ribbons, custom jewelry/ clothing. If you have ideas or suggestions I am all ears.

Monday showed its butt today

Let’s start by saying overall, my day has been good! HOWEVER, little things made the day awkward. This morning my hands were weaker than normal and my puppy exploited this by using the moment I need fine motor skills to clip on his chain to wallow on the floor like a monkey.

Then while deciding to get my laundry together to wash this evening since I felt like poop this weekend my puppy decides to chirp like a bird and then howl because he thought I was leaving him…Mind you I can’t trust him further than I can see him and he thought I’d leave him out in the open to roam.

Last time he got out! And this was only part of it!

I got to work and all technology, computers, suction, and processing for financial services through 3rd parties went berserk.

Then there must have been a full moon or an airborne chemical anomaly that hit the world at the same time and only the immune are confused on what is going on. Patients today made me seriously consider if the things in front of my eyes were even real. Patients saying unaware if they made appts or not, patients creating treatment that was not there, it just went on. We have never had so many emergencies unless it’s been a full moon either. Countless people ignoring the voicemail that gave them the office emergency number but instead called this morning with the biggest emergencies.

somehow through all of this I managed to get my work done and get ahead for the first time in weeks.

I even got to take my lunch. At the end of the day all hell broke loose, with more patient issues and I eventually just told the staff to figure out a way to handle it or the patients can contact me tomorrow, I have been off for 15 and I deserve to leave on every once in a while. Then, began my journey home and on such a day thought it was a good idea to check through all my messages.

I have no idea if I was doing it on purpose or subconsciously but I did not text someone I think may be relationship material and it got weird even though I thought I was over it. I am not! I am not holding it against them but I am holding them responsible. I have to face some issues when it comes to dating but not today. I don’t know what happened to the world as I slept but please tell Monday to stop mooning us!

The Good!

So now that I have given a very brief update to my life. I would like to share the good. I have truly felt refreshed and anew. I have had a string of not so positive things happen, but I have found a way to learn from them and move on. My mother always says you are always on the right path when a lot of obstacles that are usually out of your control begin to happen. She says that is when you will be blessed for how you adapt and deal with them. I choose to believe this because any time I have been faced with a ton of grief and negativity the next best things begins to happen.

I have an addition to my singular life. His name is Storm. He is a 6.5 month old mini schnauzer with a larger than life personality. I got him at 5.5 weeks old and he never ceases to amaze me. He is quite intelligent though he does not always choose to use that for good.

I have started a new job and though I would love to grow with this organization, I hope to find my next step up. Part of that deals with creating a new business I have been working on the last year. I hope to get my finances and network together to begin as soon as possible.

I have also started working on my goals both short-term and long-term. I have decided it is always better to include your friends and have done just that. In my last post I spoke of creating a vision board. It has been on my to do list for over a year and I finally did it with my friends.

Regardless of the right hook that 2020 threw us all I have found a way to stop feeling lonely. Beginning with finding things that work for me and are great self care. Sometimes that means being a little selfish, but if you don’t go out of your way to make time for yourself, no one else will.

Long Time No See

I have been gone for some time. I have to put a completely serious post up to start before I can give me normal sarcastically funny banter I am known for. I have neglected me and everything I stand for in the last 3 years. I have gone through a tough surgery (Thymectomy) that I would not suggest unless you for sure have a Thymoma. I have been tied to many medications and have to beg to be weened off them for months. One of which was prednisone and it took them several years to even figure out I was just left on it. It was no longer serving a purpose but I was on 40mg for 5 years. I was even asked why I was on it. They never reduced or redressed it from my first hospital visit in 2014. I gained over 70 lbs and nothing had changed about my diet or exercise except that medication. I began to lose hope in my team of doctors from that point.

I have always seen myself to be quite optimistic about having MG, but that has started to change a bit. Knowing what my ultimate goal is I am getting the slowest results. I want to be able to have a family, travel the world, and feel like I did (for the most part) like I did before MG. Thanks to Soliris I do feel like me most days; however, I do not feel fulfilled. I do not feel full and loved.

Recently I had decided to go back to therapy. I finally found someone I like and started again. I feel like this is my first step back into normalcy despite the weight loss and new beginnings leaving bad relationships and jobs behind. I do not wish to get too in-depth with the jobs and relationships because I feel I am finally getting on the other side of that but I would like to say I am gaining my motivation and confidence back.

I am a person with a lot of light and positive energy. That being said, I am an empath and that can be a catch 22. Partners are attracted to me because I have something they do not possess and when they realize it is not something I can give them but they have to find for themselves the relationship becomes sour. I begin dragged down by their negativity and an object of them lashing out.

Do not misunderstand me, I have my own baggage as we all do but many past relationships have confirmed this as well as my therapist. I kept thinking it was me, because it was the same pattern. Then I realized that I will always attract them I have to look beyond those and keep moving to find equality or at the very least mutual goals and needs that fit like a puzzle.

I created a vision board, went back to therapy, created my budget, and began blogging again and realized I will be where I aspire. I have built up a great support system and network of amazing accomplished individuals. I am beginning to feel loved and full and know that I am enough!

My New Playmates

So I love my new job. My coworkers and the providers I support are amazing. I work in a professional mental health office and no 2 days are similar. There is nothing boring about this job. In no particular order lets talk about a few of them. There is so much intelligence and talent in this office it is ridiculous. Our Steampunk Pushing Happiness And Sustainability/Scripture (SPHASS for short). I also feel the nickname SPHASS fits perfectly because she can be quite easily distracted.

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You can find her giving random puns, a heartfelt scripture, or secretly asking you how your day was and offering awesome advice and solace when no one is looking. She also has knack for being very in the zone and not paying attention until you say her name. So you can be talking right to her and having the most in depth conversation or question and then she pops up

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and says where you talking to me. And you have to start all over again. But please don’t get this twisted because we called her name, she was simply replying to her name. She seriously heard nothing and you really do have to explain the whole situation and she was just glad to be brought into the conversation. Much like me, I think we both feel a bit on the edge of the bubble somehow with some of the office conversations as we seem to be in some other world when things happen, so SPHASS like to show up at times dramatically for some of those conversations.

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We well talk more about these moments in depth later. SPHASS’s name also come with scripture and sustainability because is known for having the timeliest proclamations and self penned scriptures and sermons that she shares with us all. They are quite profound. Again I will expound more SPHASS  in the future but let’s meet the rest of my office playmates.

Then you meet the newbie that came before me.

Serendipty Spice is amazing she is always upbeat even when she is sleepy and needs a cup of coffee. She has a very BoHo chic style and is very into fashion creation and art. I was amazed that she created from scratch her own Halloween costume that looked just like Truly Scrumptious the female character below:

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She is also very into the Spice girls and wants to see the perform live all be damned no matter how many are performing it’s her dream.

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Serendipity Spice is so helpful and sees when I am struggling and because I am sitting right beside her gets most of my questions. She also sat in the hot seat right before I did and to me seemed to handle it like a pro. I did not see a crack. She shows me that asking questions is not a weakness which in fact was for me. After a few jobs that made asking questions a horror story I am glad to know that asking questions doesn’t make you look/feel stupid and Serendipity encourages. She runs over like a flash.

She also loves to dance. I mean a song comes on that she knows or loves and she is on it. point and case jingle bells came in and she instantly thought mean girls and busted out with their rendition and we all busted out laughing

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The multi-tasking the also ensues. While also managing to think of the additional providers and additional staff members just because. I have seen it and not to be nosy but simply asking questions and observing because I did not know thinking (the worst) what has happened watching Serendipity bring in flowers and cards for people just because.

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And finally and this is just my home office front staff I spend most of my time with them so I know them better I am taking my time to get to know everyone else. Without ado Mama Huxtable is up. She is a firm sweet person but just do what she asks. She is not overbearing she is not super lovely dovey. These things are not needed in an office and it is much appreciated. She is funny as hell. But she will give you a dose of truth.

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She keeps her provider on a tight a ship as possible and he is not able to move without her because she is his backbone. She is also the glue of our little ship. She can train give a different perspective on something you know you have asked 10 times and not snatch your head off and throw it across the office.

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She has NEVER said this but in my mind I am I believe after a question I have asked for the millionth time I would have had that thought!

She can has to listen to long winded patients, deceitful ppl, and panicked indivdials day in and day out and stays fairly calm even as I bombard her with a million Mama Huxtable questions about how to do this and that since I am still learning. I would just throw me away by now.

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She is the gatekeeper to her provider and they know it and that power calls for some HILARIOUS moments. She is not only firm here but those patients get extra nice after some not all were extra rude to us trying to get to her. So we let her know this too. Sometimes they are rude because she has already instructed us to tell them something and they insist on getting to her and we just say what she stated and they are salty because they are pouting. Adults who play with Mama Huxtable and don’t follow the rules are put you in time out for not following the rules will not win. It is funny when they think they will go around her to one of us though.

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Game Over her word is FINAL!

Anywho this team is awesome and I would not change it! They are supportive and helpful and help me learn and make this office a great place for everyone. The other staff, providers, and patients love them.

They have even helped me in a semi-crisis; so it’s not just when the patients have a crisis. We all have our moments. I have dealt with crisis situations at work and then one day just after a crisis situation I actually had a semi health concern that shook me and I broke down mentally myself and they all were very supportive. I was a bit embarrassed. but they were all solid when I was vulnerable. I was so glad. I was even more glad to still have my job after having to leave early. During that whole episode I was at work every day except missing the 90 minutes that day and 30 minutes days later for samples for the doctor. I had a bad virus that ripped through me for just over 10 days and I lost 14lbs in the process.

I can truly say that at this point they are growing on me.

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I have at least 2 more that sit at the front 2 more that are at this office that help at the front with me and work closely with us that I want to speak about but that will be another post. Until next time.

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Thymectomy Part 3: Recovery

The worst part of recovery was changing the bandages. I have sensitivity to tape and prednisone causes thin skin and to top it all off  my bandages were in awkward areas under my breast and lower armpit area. So yes it tore my skin and causing this to be more complicated that it already was after a hard surgery and of course it was still tender.

What I was not ready for was the nerve pain and the nerve damage though I was warned about the nerve damage and possible loss o sensation. I could have dealt with a bit more of this with all the bandage changing. However, the nerve pain was almost unbearable at first. It would be sharp shooting pains and it felt worse than knives cutting into my skins. I was then put on 300mg of Gabapentin 3 times a day. I was unaware this was going to make me sleepy. And yet I was still driving but had no idea why I felt a bit off. My doctor was shocked I had made it to the follow up appointment with that dosage. However, Since I was healing well and I do not like to be on an medication long and they were taking the stitches out about 10 days later I asked to be taken of the Gabapentin since my family make-up has a history of addiction. I also called my neurologist and asked her opinion. My neurologist was very irritated that I was placed on such a high dosage and immediately tapered me down before the hospital doctor could even respond. Every time they mess with my meds my Neurologist are like:

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But then the absolute worst for me was the first time I saw it and felt t myself with gloves and how butchered I felt. The holes literally holes in my skin that took months to heal. I literally had to stick my finger just inside one of them daily to pack it with gauze and each day I broke down just a bit. I know it is never as bad as it seems and I am not vain it was just the shock. I just broke down. I thought that was the end of it all though once I healed physically. that’s it.

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Or so I thought

But then started new pains like the numbness that has still not gone away a year later in some parts of my armpit and upper back. And the mental anguish that came with the fact that my MG is resistant to a thymectomy and quite aggressive and requires something more that such a surgery since I never had a thymoma and I was just reaching for anything since at the time they had nothing else. I went through such a process for nothing it seems.

Unfortunately it also seems they wouldn’t let me go through to the phases I get to go through now unless I had a thymectomy to prove how resistant my MG is. That is both a shame and a gift to be one the other side. I just pray that in the future others do not have to go so far if they don’t have a thymoma and they can see beforehand that if they are already so resistant that perhaps just trying the noninvasive treatments first may help. I was going to try Rituximab but in the year since we talked about it an even newer medication with nearly no side effects and less time from work has come out and better results.

I will be doing Eculizumab in the near year. Look for my next post to talk about the benefits of both.

A brighter Future

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Thymectomy day 2 They surgery date

Surgery day was filled with emotion as usual and worry about body order as you have to wash with the most extreme hospital surgical scrub several times the night before to get all body oils ever.
Your body is dry and if you sweat like me from stress you are very concerned about this; however, with as cold as it is in there (for this very reason I quickly put this out of my mind.
You are allowed when you have MG to take your MG meds and they ever tell you not to you are with the wrong specialist and you WILL be sorry as I have learned at my very first surgery every years ago. You will have an exacerbation and they will have to wait hours to begin you surgery after they give you those very same meds.
So ignore ANY doc who tells you not to take them before (at least when it comes to your mestinon type medications). However, this day and age they have since learned their lessons. 5 years ago I had doctors fumbling. My specialists since then have told me what I am telling you (insert funny pic)

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I did not want my mom to leave me and just before she did I sent texts to everyone letting them know I was about to go in after they gave me the sedative (BIG mistake). it was actually something to calm me down before the sedative but I could not see straight or think straight and my texts when sideways quick. I sent the first short ans sweet then the second a few spelling errors. Why I did not mass text I will never know. Then the last was to my boyfriend Philly. and it came out as follows:

Gloo ppl_me n muh t ongue hol my eyes r warpee

If you can interpret this go for it. He still laughs and sends it to me every so often as it he locked the text just so it never goes away. Never going to live this down.

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I believe it was trying to say something like my feels feel funny or I love you or something because I forgot the  love you I am going into surgery now part. However; my mom had me covered on this. Everyone knew this as it was the biggest surgery of my life and they could contact my mom on updates.
Then I was rolled back, they asked me a few questions about my favorite music to calm me as they set up because you know it wasn’t for me as I was going to be sleep, then they gave me a sedative to calm me as they put in the arterial blood line to get my heart rate as I slept. No blood pressure cuff for this surgery. Then I was put out. I woke up in the Thoracic ICU (TICU) and then my parents were there. I was happy for that. But the Pain was there too and OMG. I had NEVER in my life had such pain. It was indeed the worst pain ever like they had broken my ribs. Because in fact everything near them was bruised since they went in near them both on the side and near the sternum through the side. I could not express this feeling enough.

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I was given a squeeze pillow shaped like a heart like the heart surgery patients since it was like open heart surgery but I got to have mine through the side of my chest with the Da Vinci robot instead of through the middle of my chest.
I had a chest tube draining liquid out of my chest hanging from the side.
I felt like Frankenstein’s monster.
I was so upset. You never realize how many muscles need the chest until you don’t want to use them. I could not breathe deeply, cry, cough, which from the surgery you needed too to get the fluid out, I could not yawn, laugh, yell, turn, and walk, far… what’s that!?! I did not even want to poop. I was so scared it would not heal. Then when my parents said they were leaving I cried involuntarily.

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The tears just popped right out my eyes. (they just started again as I wrote this part). I relieve this every time I write but it’s necessary for people who choose this who do not have a thymoma but hope this may improve their MG.

Outside of coughing one of the worst moments when the one time and it ONLY happened once to remember; a nurse helped me to my chair to sit for a bit to and change my linens on day 2. She finished and forgot to put my call bell back near me and I needed to use the bathroom and though I had a catheter it was not a catheter moment and I was in pain on top of that. I was in bad shape. I tried to call for help and did not have enough wind I found. I could not even really get to my regular level I just started crying. Luckily, other med supplies were near my area because the hospital never has space and another nurse saw me and I asked for help and they were a bit indifferent and help me get on a bedside and get my call bell. I felt so thankful, embarrassed, and exhausted. I went to bed not long after.

You stay in ICU until your vitals stabilize and they can find a room for you.
This took 2 days for me. They were packed.
Keeping your pain in Check was VERY hard you had to stay AHEAD of it before it creeped up, there was no, well maybe it will subside. Every thing was on a scale of 1-10. You had to not let it get above 4 because by the time they were able to get back to you even if it was 10 minutes later mine shot up to an 8. I got smacked often with pain like well like this:

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No but seriously that was more like the 4

The 8 was like a ghost was doing this to my ribs:

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And my lucky day before leaving I hit an 11 finally and they almost kept me for additionally days because it took over 3 that time hours to get the pain to come down fearing infection and even a stroke in my neck and left arm.  that felt like:

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I didn’t even see it coming

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I had never experienced anything like this. Even with the normal encounters during this visit it only took about 2-3 hours for the pain to subside. Each time the nurses would work mercifully trying to help me. Nurses are awesome. I tried to do so much on my own and for once during a hospital stay I could not and they did not want me to.

They kept making me lay down and would only let me walk on my therapy walks or to the bathroom. I was embarrassed to ask to get help to be bathed and groomed. I am so used to being independent. When I finally got the tube out I was happy but I was far from recovered little did I know. Mentally and physically.

Part Three WILL be here tomorrow!

My Hiatus Before Continuing….

I would love to just continue where I left off in my last story but I have that seems a bit crazy if any of you follow me and have wondered where in the heck I have been. Also I owe you a big apology. I apologize! I am back and glad to be in a better head space. To sum it up I went on a horrible depressive stance for the last year. I was terribly lost.

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A divorce, losing a job that I thought somehow I could find a career with even if not with that company, and then losing my home was just more than I could bear, then the catalyst was the biggest surgery of my life that did not change anything for me. It opened my eyes and perhaps the eyes and it also caused my team of professionals to become more blunt with me possibly out of pure sympathy and not so much out empathy anymore. They now are now not just saying the hopeful things and pumping me full of hope like before the surgery which we all need but they are actually finding more ground breaking method that are less invasive and more aggressive that have more research and coming to me with that and letting me decide based on that first.

They saw how broken I had become and now they know how resistant and aggressive my MG & migraines and other symptoms are. They have now offered me and have come up with a few solutions. I am so thrilled and this truly gives me so much hope and delight.

Now back to our regularly scheduled program

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Thymectomy Surgery Part 1: 2 Weeks Before- the Morning of

The 2 weeks leading up my thymectomy were perhaps the most stressful 2 weeks of my life. I went through the full gambit of emotions. I worked for an organization where my role changed so much that I was no longer doing what I was hired to do and neither us believed it a good fit. So I became jobless 1.5 days before I was suppose to go on leave.
I had to switch insurance companies just after having switch insurance companies 30 days before that to the organization’s as they finally just offered insurance to all employees.
It was bananas.
Then to get prepared for such a surgery you have to go through what seems like a million doctors appointments. Each case is different but mine seems to be especially different. I was someone who was never really sick and had no disease or conditions before MG; however, now I have I huge team of doctors.
I was able to still teach fitness classes for over a year after being diagnosed even with an agressive case of MG because I was so fit.
However, my breathing became an issue. It started to become more and more shallow and I had more wheezing with the exhale of it. They call it stridor.
Symptoms like the difficulty chewing, swallowing, and talking that I had when first diagnosed tapered off. Even the issues with small muscles like my fingers. They became stronger. They were later replaced with more eye fatigue and upper body weakness. Though the latter was always there, it seems to be the only regular symptoms that remain. I do not typically go into crisis anymore and have not in years thankfully. Which led me to ask about children and a thymectomy.

So to prepare in the 2 weeks prior:
-I had an IVC filter placed because i had a history of blood clots due to birth control
(this will be done likely for anyone who has a history as a precautionary measure so they will not have to worry about something going wrong)
-The doctors will schedule you for removal at this time too
-To get you strong you will have a series of plasma treatments usually about 5 (so you are as strong as possible, this will be done over the course of 2 weeks and every other day to give the body’s fibrenogen time to recover)
-Then you will have a pre-operation appoint with anesthesia we all know how this goes, just to be sure you know what to do the night before (no deodorant, no lotion, nothing AT ALL on the skin, use the antimicrobial wash) and you feel like a scaly lizard but somehow still trying to look nice

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The night before
– You get no sleep
– You try to remind yourself to eat and stuff yourself silly if possible because it’s your last meal for what seems like forever

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– No food or drink after midnight replaying itself over and over in your head and any other time you would care less and get up at 10 and not even care that you haven’t eaten ( maybe even get through a whole work day and forget to eat, OH BUT NOT THIS DAY)

The morning of

-Come in like a zombie prepared to eat cover on the phone because it has the apple icon on it and mad because someone already took a bite out of it.hungry nicki minaj GIF

-Then registration, every nurse, and the doctor reminds you which surgery you are having and you repeat your name and birth date a thousand times ( I swear I wanted to record it on my phone and just hit replay for them):

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-In my case the procedure I was getting was robotic- with the Davinci machine where they make 3 small incisions on the right side of my rib cage is how it was explained
-The docs tell you the risks:
You may have to be placed in TICU (thoracic ICU)
You may have to keep the breathing tube in if you cannot breathe on your own
You may have to keep the chest tube in

My suggestions:

Come prepared with questions:
-Do you have the option to do your prior 2 weeks of plasma treatment outpatient? I did my plasma treatments to get stronger the 2 weeks prior outpatient to reduce the risk of infection during cold/flu season (since it was ath the hospital) Also because I wanted to keep going to work right up until I went out for leave…
-What they will do to manage your pain
-What is the longest time you may stay in the hospital and wrap your mind around it
-Will you receive additional plasma treatments after surgery when/ while admitted
-Will you go back to regular treatment methods once you leave the hospital?
-Make sure that neurology gives a list of contraindicated procedures and meds over to the dept/ nurses taking care of you during your recovery ( I was not in neurology thankfully and my surgeon is a thoracic surgeon so the nurses needed this info brought to them from another area of the hospital (easy enough).
-Last are there any medications that you may need t bring from home that they do not supply at your hospital, mine does not keep EMLA creme (the lidocaine creme for ports, so if I were to get treatments I needed it and brought it)

What to Bring

Bring slides

Bring a robe if they do not supply one

Bring headphones or earplugs

You will learn why in part 2, stay tuned….


***please remember these are my experiences and no 2 experiences are the same, please speak with you provider about your needs***


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‘What’s the name of the spell that paralyzing people in Harry Potter?’, asked Philly. We were laying in and he randomly asked me this.

I sat for a moment, caught off guard, said huh and then responded stupefy! I have no idea why I said huh first it seems to be a reaction at times because it hits my ears or maybe even my brain late.

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I don’t know if his mind was still reeling from earlier that night or what but he seemed to be pulling one of my numbers and making the punchlines for me. Earlier that night I had the most intense cramps in my calves I had ever experienced in my life. They were so bad that I could not walk, could see the muscle spasming, and literally took my breath away each time it jumped. I thought we might have to go to the hospital because unlike the first time I experienced blood clots in my legs this time I was nearly certain that I might have some.

I have NEVER felt this sort of pain in my legs before. I screamed in pain and the pain lasted for well over 30 minutes. I could not ever touch the area to begin with. Philly was beside himself. However, he would not show this of course. He tried to massage the area which hurt, then he tried to massage my feet which helped at first. Then that didn’t work. Then he tried to get me to sip water. We realized immediately I was severely dehydrated. Moreover, he he was trying his best to calm my breathing which has suffered greatly from the stress of it all going on about an hour at this point.

He sounded like my Lamaze partner,

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coaching me through deep breathing exercises and giving me encouraging words and rubs on my back while holding me. Ok maybe he wasn’t that intense but he was quite soothing after I was able to relax

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It was like a combination of the 2 in my mind

But eventually he also remembered I probably needed some magnesium after a bit of research and got me some dark chocolate. I was a bit reluctant at first since I thought part of the reason I was in that mess was because of the dehydration from salt and sugar and sweating all day with little water. We had a state fair extravaganza and my poor body had been through the wringer.

I even spent the rest of the weekend so afraid of those cramps again I barely did much else. I will say this, I will be stocking up on gatorade and pedialyte pops ASAP to replenish what was lost since I let myself get so run down. This is not like me.

I have to be careful I am too close to my surgery to sabotage it and I do not want to jeopardize me in general nor scare Philly like that again. My MG scares or health scares seem to come out of no where. We are having a good time watching t.v. or eating and then boom. Poor thing.

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