Motor Mouth VERSUS MG…FIGHT

I feel like I am in an old school capcom game like street fight when it comes to MG sometimes. I love to talk and it reminds me that my throat, tongue, and lips are made of tissue and muscles. My illness being a neuromuscular illness these areas are affected. In fact for me these areas are affected FIRST. I am a VERY talkative person and so when you give me a disorder that can limit me or cause me to shy away from that, well you have definitely put me down…(for a bit). This has definitely helped reduce my anginophobia as well.

I start to slur and have trouble swallowing and have to sit and rest my mouth for a bit on my weaker days. But luckily I have not had to much of that in the last 2-3 months. This is a first since getting the disorder.Though with stress if I get upset enough in a day I can actually cause slurring and some tightness in my throat after relaxing for a 30 minutes it goes away. Whereas in the past I would be stuck like this for a a day or more or until I took my next does of medication. Sometimes if I was really weak I would be stuck like this for several days and know it was time to call the doctor and ask for a treatment before I needed to be hospitalized. Right now those treatments have gone from every 3 weeks, to 4 weeks, 6 weeks, to now we are trying every 8 weeks. Our goal is 12 weeks minimum.

I have faith this can happen!