I have to say that lately I have been doing a bit too much in terms of physical strength versus what I have to give in terms of my MG. I have overdoing it quite a bit lately and though I know this is not a good thing knowing that unlike most people I have no reserve and once I deplete early in the day I could seriously damage and land myself in the hospital if I go TOO far…I push anyway.
Some people ask why. Well it is not always a simple clear cut and dry answer. sometimes it is because I am frustrated and I am tired of waiting on others to do things that they say they are going to do (their job/ responsibility) and do not so I just do it.
I can’t help it sometimes, it’s just my type A personality taking over!
Sometimes it is because I really just want to feel normal and hang out with friends and family but my body really was not up for it and I should have been at home resting or sleeping instead. But because I have spent so much time between school, work, and now this disorder being missing over the years I just want to be part of my family and friends again. (However, I learned with some of those people, this feeling is not a 2-way street and they are just trying to make me feel guilty for that time away though they had made little or NO effort since).
Other times I push myself because I need to try to make new boundaries and see if I have improved any with my Myasthenia Gravis. I never want to become complacent with it. I want to see if I can eventually go years without treatment if possible until they can find a cure.
Then there are the rare occasions like now, where medical experts will not allow me to get treatment and want to ‘stress’ me a bit and go on like normal so they can run tests (single fiber EMG) on me. They even wanted me to stop several medications before seeing them; however, I told them with my set of symptoms my mestinon could not be stopped before hand without a plex treatment having occurred in the last month in this heat. I mean I have been sucking on my inhaler like it was oxygen the last 3 days.
More so, since I have to stress myself anyway and cannot get treatment yet until afterwards we might as well make it count because I do not want to wait to do extra over exerting things for after treatment occurs and ‘ruin’ the purpose of my treatment since I do not plan on getting another for 3-5 months after that. So we are rearranging our house now and doing ‘spring cleaning’. It’s hard and I am probably doing more than I should faster than I should but I am tired of looking at the clutter and mess and though it is not all mine and he is kind of helping as men do
Ok he’s not this bad but you get the idea…
I have to spearhead this or it will not get done before the treatment and my house will never look the way I want it.
Myasthenia Gravis 