Pushing to far or not?

I have to say that lately I have been doing a bit too much in terms of physical strength versus what I have to give in terms of my MG. I have overdoing it quite a bit lately and though I know this is not a good thing knowing that unlike most people I have no reserve and once I deplete early in the day I could seriously damage and land myself in the hospital if I go TOO far…I push anyway.

Some people ask why. Well it is not always a simple clear cut and dry answer. sometimes it is because I am frustrated and I am tired of waiting on others to do things that they say they are going to do (their job/ responsibility) and do not so I just do it.

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I can’t help it sometimes, it’s just my type A personality taking over!

Sometimes it is because I really just want to feel normal and hang out with friends and family but my body really was not up for it and I should have been at home resting or sleeping instead. But because I have spent so much time between school, work, and now this disorder being missing over the years I just want to be part of my family and friends again. (However, I learned with some of those people, this feeling is not a 2-way street and they are just trying to make me feel guilty for that time away though they had made little or NO effort since).

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Other times I push myself because I need to try to make new boundaries and see if I have improved any with my Myasthenia Gravis. I never want to become complacent with it. I want to see if I can eventually go years without treatment if possible until they can find a cure.

Then there are the rare occasions like now, where medical experts will not allow me to get treatment and want to ‘stress’ me a bit and go on like normal so they can run tests (single fiber EMG) on me. They even wanted me to stop several medications before seeing them; however, I told them with my set of symptoms my mestinon could not be stopped before hand without a plex treatment having occurred in the last month in this heat. I mean I have been sucking on my inhaler like it was oxygen the last 3 days.

More so, since I have to stress myself anyway and cannot get treatment yet until afterwards we might as well make it count because I do not want to wait to do extra over exerting things for after treatment occurs and ‘ruin’ the purpose of my treatment since I do not plan on getting another for 3-5 months after that. So we are rearranging our house now and doing ‘spring cleaning’. It’s hard and I am probably doing more than I should faster than I should but I am tired of looking at the clutter and mess and though it is not all mine and he is kind of helping as men do

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Ok he’s not this bad but you get the idea…

I have to spearhead this or it will not get done before the treatment and my house will never look the way I want it.

 

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